Sickle cell disease care across Africa is set to improve with the launch of the Imara Sickle Cell Framework. African health leaders and global partners introduced the new regional initiative to strengthen healthcare delivery systems. The framework focuses on improving coordination across diagnosis, treatment, referrals, and long-term patient management.
The initiative was launched in Nairobi, Kenya, and Kampala, Uganda. It aims to help countries convert healthcare policies into practical solutions within national health systems. The framework supports governments and healthcare organizations in building stronger pathways for people living with sickle cell disease. Sickle cell disease remains a major public health concern across Africa. The continent carries nearly 80% of the global disease burden. Hundreds of thousands of children are born with the condition every year.
Strengthening Sickle Cell Disease Management Through Coordinated Care
The Imara Sickle Cell Framework focuses on improving how healthcare systems deliver care. Instead of replacing existing global initiatives, the framework provides a practical approach for implementation.
“Families need support beyond diagnosis, including regular treatment and follow-up care close to home,” said Dr. Chris Baryomunsi, Minister of Health of Uganda. “This initiative supports our commitment to improving survival and quality of life for children living with sickle cell disease and strengthening access to care across the country.”
“Sickle cell disease remains a significant health challenge for Kenya, particularly for children and families who depend on early diagnosis and lifelong care,” said Dr. Ouma Oluga, Principal Secretary, State Department for Medical Services, Ministry of Health, Kenya. “Through the Social Health Authority, we are strengthening access to diagnosis, treatment and safe blood. The Imara Framework helps connect these services into a more coordinated system of care so that patients receive the support they need throughout their lives.”
Initial implementation has started in Uganda, Kenya, and Côte d’Ivoire. Additionally, the framework allows countries to customize solutions according to their healthcare systems and local requirements.
Expanding Healthcare Access Through Regional Collaboration
The Imara Sickle Cell Framework promotes collaboration between governments, healthcare organizations, and global partners. Furthermore, it creates a shared strategy for improving continuity of care for individuals living with sickle cell disease.
“Our coalition supports any effort that fosters government commitment, brings alignment and reduces fragmentation in sickle cell care. Imara offers a practical blueprint to turn these commitments into care that reaches patients,” said Mario Ottiglio, Secretariat Lead of the World Coalition on Sickle Cell Disease.
The initiative supports broader healthcare transformation efforts across Africa. It aligns with priorities established by African governments, Africa CDC, and the World Health Organization. These efforts focus on early diagnosis, stronger health systems, and expanded access to treatment.
“Important progress has already been made in recognizing sickle cell disease as a public health priority,” said Eyong Ebai, General Manager, Africa, Terumo Blood and Cell Technologies. “The next step is ensuring these priorities translate into coordinated care that supports patients throughout their lives. Imara was designed to help countries strengthen that continuum of care.”
Through the framework, African healthcare systems can improve patient support and treatment continuity. Consequently, the initiative aims to reduce gaps in sickle cell disease management. The launch represents a significant step toward creating stronger healthcare networks. Additionally, it supports efforts to ensure people living with sickle cell disease receive timely and continuous care throughout their lives.
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News Source: PRNewswire.com
